User involvement guidelines published in Northern region
User involvement guidelines for the whole of the North West, North East and Yorkshire have been released.
The document was drawn up with input from people affected by diabetes, healthcare professionals, commissioners and Diabetes UK during a number of engagement events.
The work led to the development of a series of six pledges, each supported by suggested actions to help deliver them.
They are intended for use by anyone who works with people living with, or at risk of, diabetes, including NHS England, PHE, Clinical Commission Groups, Clinical Networks and NHS Trusts.
The pledges are:
Promote involvement – Make including the views of people affected by diabetes the norm not the exception.
Positive experience – Make all experiences of involvement as positive and meaningful as possible.
Partnership working – Make use of what’s out there and link with existing groups.
Participation for all – Provide opportunities for involvement that work for everyone.
Practical support – Reduce the barriers that are stopping people being involved.
Plain language – Use language that’s clear to everyone.
Bridget Hopwood, Programme Manager for User Involvement at Diabetes UK, said: “These days, most healthcare professionals know how important it is to listen to and involve their patients, and the impact it can have – however, we often hear that it isn’t always easy to do. These guidelines are designed to help take the first steps to meaningful involvement by giving clear actions and tips for healthcare professionals, and also to encourage consistency in how user involvement is approached across the region
“We knew that it was vital that the guidelines were co-produced with the people they were for, so the whole process – from start to finish – has involved people living with or at risk of diabetes, healthcare professionals and frontline staff, and commissioners including NHS England and NHS Improvement, local CCGs and PHE to ensure the guidelines are as effective and impactful as possible.
“We worked together at a number of engagement events, starting with two workshops in Leeds and Newcastle in late 2018/early 2019. The workshops explored some of the challenges and barriers to involving service users, discussed priorities and started to produce ‘pledges’ and actions plans.”
The next step is to ensure the guidelines are distributed and implemented as widely as possible in the region through GP surgeries, Patient Participation Groups, clinical networks, Sustainability and Transformation Partnerships and even through local councillors.
To access the guidelines, click here.